Ummi and Imran are brother and sister they both have sickle cell anaemia and support one another. Their mum Charity Mohammed is a Trustee for the charity and supports children in hospital also.
Other Case Studies
Ummi says:
“My brother and I both suffer from Sickle Cell Disease. We joined Sickle Cell and Young Stroke Survivors in 2012, and have taken part in all of their activities. We are the founding members of the Reach Zone and help to create awareness about Sickle cell amongst friends and in our community.
Sam, aged 14, of Nunhead is the proud winner of a Shooting Star Bravery Award for his courage in fighting Sickle Cell Anaemia and surviving stroke.
“Sam takes his medicines very reliably and is cheerful and polite. He never complains about his health and is certainly very brave.” Dr. David Rees, Samuel’s consultant at Kings College Hospital
David is 20 years old. This is his view on his first time in a Theater.
“My trip to the watch the Lion King – It was such a great opportunity for me to have agreed to go out with the SCYSS club members, Personally I have always preferred to stay back home and just read some novels or catch up with my school work. Its not because I don’t want to go out, but because of my condition, I have not been too keen socializing with people.”
J&J are identical twins who have sickle cell anaemia. They joined SCYSS in 2006 and have been very active members to date.
The girls are fun to be with and finish off each other’s sentences.
With their condition as identical twins, it is rather difficult for their mother because as soon as one has crises in less than 15 minutes the other will follow.
Claire is a bubbly young lady always bopping to her music and posing for the camera. Claire came with SCYSS for our Butlin’s residential trip and was keen to join in on all the activities. She had a fun time and supported her roommate who fell ill in the night.
Now she and a group of others have formed a friendship group using WhatsApp to message each other and through this, they are able to know when one of them is in hospital and go as a group to visit.
Tolu is a bubbly 9-year-old who told us that she is ‘fed up of drinking medicine every day’. She loves school so hates it when she falls sick and has to take time off.
Tolu’s mum is a Stroke survivor and does a fantastic job with her daughter even though it is difficult. Tolu enjoyed herself on the Butlin’s residential trip SCYSS ran last year, thanks to the generosity of our funders.
Little Shiloh is a Stroke survivor and regularly receives monthly blood transfusions too. She has Moyamoya syndrome but is a little fighter, her stroke makes her tired and she cannot walk far.
On a trip to watch Matilda her brother came along for support.
We know that siblings play an important part in bridging the caring roles of parent/carers and we support both the child and their siblings as well as their friends.